Glenis Willmott, MEP for the East Midlands, met with families from Nottingham and Leicester this last saturday (19th November) that had been affected by Severe Combined Immunodeficiency (SCID), which is more commonly known as “bubble boy disease”, after David Vetter, a boy with SCID, lived for 12 years in a plastic, germ-free bubble.
Mrs Willmott was also joined at the meeting by medical experts from Great Ormond Street Hospital, in a bid to find the best way to highlight a campaign to get SCID listed as a disease that is automatically screened for at birth.
The screening procedure is cheap and easy to carry out, and once diagnosed, the disease can actually be cured. However, if it is not spotted and treated the baby normally dies before its first birthday.
Mrs Willmott said:
“This disease is life threatening and a simple procedure at birth can save lives”
“The cost of diagnosing the disease is negligible when compared to the cost of treatment if undiagnosed and the child becomes very ill”
“I am looking forward to meeting the mums and dads who have been affected by this awful disease, and hopefully, together we can pave the way for all children to be screened at birth”