There is no known cure for MND, which kills five people every day in the UK, with half of people dying within 14 months of diagnosis. This terminal disease can affect any adult at any age. However, the condition is still little understood and this contributes to many people with MND not receiving the care and support they need.
The MND Charter has been launched with the aim to change this. The five-point charter sets out what good care looks like for people with MND and their carers and is designed to raise awareness and understanding of this devastating disease.
Glenis Willmott said: “I hope that many more people will sign up to the MND Charter, which has already received endorsements from the Royal College of General Practitioners. Everyone with this devastating disease should be supported to maximise their quality of life and die with dignity.”
Farah Nazeer, Director of External Affairs at the MND Association, said “What matters most is that people with MND and their carers can access the right care, in the right place and at the right time. We need to ensure that the needs of people with MND and the priorities for good care as set out in our charter are recognised and respected. We urge everyone to sign the charter to show their support”.