When we are ill we expect to be given the medication or surgery that will be the most effective at making us feel better. But how would you feel if you knew that your doctor would not prescribe you the …

Last Saturday, I met Jack and Guy along with their parents to talk about Severe Combined Immunodeficiency. Both Jack, aged 7 and Guy, aged 6, suffered from SCID when they were both around four months old.

When Jack and …